Courtenay recently retired as a professor of psychiatry for the past 38 years. She was trained at the University of Vermont and Yale and worked last in the Department of Psychiatry at the College of Physicians and Surgeons at Columbia. She simultaneously retired as director of the Center for Rehabilitation and Recovery at the Coalition of Behavioral Health Agencies in New York City which serves 130 agencies caring for 350,000 people. Courtenay moved to New York from Boston where she was the Senior Director of Boston University's well-known Center for Psychiatric Rehabilitation under William Anthony. Among her research endeavors, she participated in two three-decade NIMH studies of schizophrenia and other serious illnesses and found that many once profoundly disabled persons could and did significantly improve and/ or even fully recover. Her study in Vermont is now considered a "classic" in community psychiatry. These findings, similar to nine other long-term studies from across the world, helped to create the Institute for the Study of Human Resilience in order to investigate ways in which people reclaimed their lives including getting back to work. To date, Courtenay has received 52 federal, state, and foundation grants and contracts for schizophrenia research and studies of mental health services. She has been the recipient of over 45 awards and honors including the Alexander Gralnick Research Investigator Award from the American Psychological Association's Foundation for "exceptional contributions to the study of schizophrenia and other serious mental illness and for mentoring a new generation of researchers'. Courtenay has published nearly 100 papers about schizophrenia, rehabilitation, and recovery and has presented findings from her studies and clinical work in over 550 state, national, and international meetings. She has worked with 30 states, Australia, New Zealand, 11 European, and 9 Asian countries including China, to redesign their systems of care. She was recently married and now lives in Virginia. Courtenay established Integrated Health Outcomes, a consulting organization providing staff training, program evaluation and policy implementation in Virginia.
In an effort to uncover the biochemical basis of mental illness, Dan obtained a PhD and carried out neurochemical research at NIMH. However, during that research, at the age of 25, he was diagnosed with schizophrenia and hospitalized on 3 occasions. During the next 5 years, he recovered from schizophrenia, and dreamt of humanizing the mental health system. To fulfill that dream, Dan earned an MD and completed psychiatric training at Harvard Medical School. He has practiced as a board-certified, community psychiatrist for 30 years. To transform national policies, he founded the National Empowerment Center, was a member of the New Freedom Commission on Mental Health (2002-03) and has helped organize the National Coalition for Mental Health Recovery. To non-coercively assist person in crisis, Dan has worked to create peer-run crisis respites and developed emotionalCPR, a program for teaching all community members how to provide trauma-informed care to others who have experienced trauma.
Dave is a partner with the law firm of Kenlan, Schwiebert, Facey & Goss, P.C. in Rutland, Vermont. He has been with the firm since 2003 and is part of its commercial, land use, and utility law practice groups. His primary practice is in the area of state and local land use permitting, nonprofit and 501(c)(3) law, and telecommunications law. Prior to coming to the firm, Dave worked for several years at Choate, Hall & Stewart in Boston. Dave received his J.D. from The University of Texas School of Law, with honors, and his B.A. in Philosophy from Pomona College in Claremont, California. Dave is a student of Goju Ryu Karate Do and enjoys woodworking and guitar. He currently resides in Rutland with his wife, Heather, and two children. Dave can be reached at
dcooper@kenlanlaw.com
or (802) 665-2702.
David is a professor of psychiatry at Cardiff University in Wales and a former secretary of the British Psychopharmacology Association. He is generally considered one of the premier scholars of the psychopharmacology era and has written more about "medication optimization" (one of FEMHC's principal focuses) than any other psychiatrist in the world.
Dennis is the Vice President in charge of national marketing and development operations at the Foundation for Excellence in Mental Health Care. He has over thirty years experience in the not-for-profit fundraising field and 20 years experience as a consultant for other national firms. His skills include campaign management, marketing, public relations, strategic and long range planning counsel, major gift negotiation and volunteer recruitment. Over his long career, Dennis has worked as the National Director of Fundraising for the Multiple Sclerosis Society, Vice President of Campaign for the United Way of Southeastern Michigan and the Director of Development for Children’s Hospital of Michigan. He has successfully managed numerous multimillion dollar capital, endowment and annual operating projects, raising over $500 million. He has worked with major hospitals, educational institutions, national health agencies, social service, arts and cultural institutions throughout the United States.
Dennis can be reached at
dennis@femhc.org
or (248) 506-3030.
Don is a retired Actuary having completed his career managing life and property insurance subsidiaries of major financial service companies. For the past 10 years, he has formed and built with his wife and many wonderful staff CooperRiis, Inc., a non-profit healing community that works with people suffering from a major mental illness and (often) substance abuse. CooperRiis currently has 100 residents under care, 150 FTE staff, a $10 million annual budget, $25 million in assets, and no debt.
Fran is Director of the International Initiative for Mental Health Leadership (IIMHL), which he founded in 2003. IIMHL is jointly funded by seven countries, including the United States, to build partnerships between mental health leaders in order to rapidly exchange knowledge of best and promising practices internationally. Before his work with IIMHL, Fran was CEO of Monadnock Family Services (MFS) in Keene, NH, for 10 years. In this role he looked internationally to identify, and then replicate, innovative services that promote recovery and social inclusion for long term consumers of mental health services. Such services have included the Wyman Way Cooperative, an independent, non-profit corporation managed and operated by long-term consumers of mental health services (based on an Italian model), and the Elm City Cooperative, where consumers own their own homes. Fran also led the development of Monadnock Partnership; a region-wide, integrated service linking health care, social services and economic development.
Gina is the President and Chief Executive Officer of the Foundation for Excellence in Mental Health Care and an Associate Clinical Professor in Psychiatry at Oregon Health and Sciences University. She formerly served as the Executive Director of the Association of Oregon Community Mental Health Programs for 11 years and has worked extensively in mental health and addictions policy, leadership and management, health care financing and political advocacy. Gina has also been a Tillamook County Commissioner serving as Vice-President of the Association of Oregon Counties. As a former Community Mental Health Therapist, Adolescent Program Director and Clinical Supervisor, she gained experience in all aspects of community mental health including prevention (she ran a teen theatre program), civil commitment, compliance review, and crisis management. Gina also spent 25 years as a dance teacher and choreographer.
Gina can be reached at
gina@femhc.org
or (503) 930-0349.
Jessica is responsible for website design and management, marketing and media development, and coordination of information technology for Foundation programs. Jessica formerly served at the Association of Oregon Community Mental Health Programs for five years. Prior to that, she served as legislative staff at the Oregon State Capitol during the 2003 session, followed by three years at the Office for Oregon Health Policy & Research. Jessica found her passion for improving standards for mental health care just out of college during her two-year tenure as an employee of a community psychiatric crisis system. Jessica lives in Salem, Oregon and in her spare time enjoys wilderness backpacking with her two rescue dogs. She can be reached at
jessica@femhc.org
or (503) 515-6884.
Larry has, for the past twenty years, worked on Wall Street as an attorney specializing in complex financial and capital market products. He also has served as the President of the Board of Directors of Gould Farm, a residential therapeutic community dedicated to helping adults with mental illness move toward recovery, health and greater independence through community living, meaningful work and individual clinical care. Larry is presently on the Board of Directors of Gould Farm and is a member of both the Finance and Governance Committees.
Louisa is a psychotherapist in Santa Fe, New Mexico.
Patty is the Administrative Manager for the Foundation for Excellence in Mental Health Care. Patty formerly served as the Administrative Manager for Jefferson Behavioral Health, a mental healthcare organization in Southern Oregon, for five years. She has over 12 years experience in human resources and also has experience in contract management, risk management, office management and meeting coordination. Patty lives in Oregon City, OR and enjoys spending her free time with her husband and son. Patty can be reached at
patty@femhc.org
or (541) 291-0650.
Bob has over 40 years of experience working at all levels of the mental health and chemical dependency field, from case manager and alcohol/drug counselor to supervisory and management responsibilities. He was Oregon's commissioner for mental health and addiction services from 2003 to 2008 and is part-time Associate Professor in the Department of Psychiatry at Oregon Health and Science University in Portland, Oregon. Bob has published in the national peer-reviewed literature on consumer-operated case management services, dual diagnosis, supported education in a state hospital setting, and other related topics. In addition to the Foundation board, he also serves on the boards of the Oregon State Hospital Museum and Dual Diagnosis Anonymous of Oregon.
Sandra is the Medical Director at HowardCenter, a community mental health center in Burlington, Vermont where she has worked for the past 17 years. She is also Clinical Associate Professor of Psychiatry at the University Of Vermont College of Medicine. For over 20 years, her clinical practice has primarily included patients with schizophrenia and other psychotic illnesses. She was named to Best Doctors in America in 2003. She currently writes a blog called Anatomy of a Psychiatrist on the website www.madinamerica.com.
As founding Executive Director of the CooperRiis Healing Community, Virgil began his mental health career in 1975 at Gould Farm, America's oldest therapeutic community. He was the founding Program Director of Gould Farm's Boston Program. Later, he was also the founding Executive Director of two other therapeutic communities; Rose Hill in Michigan and Gateway Homes in Richmond, Virginia. His past roles also include being founding President of the REACH Community Health Foundation, Vice President of Planning and Development for Northern Berkshire Health Systems, President of the Berkshire Taconic Community Foundation, Senior Vice President of Legacy Banks, and Adjunct Professor of Philanthropy for the Visionaries Institute of Suffolk University. He has served on 10 nonprofit Boards, 6 of which were for new community health organizations.
Email:
virgil@femhc.org
Bill served as the founding Director of Boston University's Center for Psychiatric Rehabilitation, beginning in 1979 until his retirement from that position in June, 2011. He is now Professor Emeritus in the College of Health and Rehabilitation Sciences at Boston University. Bill is recognized as a major leader in the field of psychiatric rehabilitation and recovery. For the past 40 years, Bill has worked in various roles in the field of mental health and psychiatric rehabilitation, and has been honored for his performance as a researcher, an educator, and a clinician. In 1988, Bill received the Distinguished Services Award from the National Alliance for the Mentally Ill in recognition of "...his efforts that challenge outdated ideas which limit the potential of mentally ill people. The innovative programs created through Bill Anthony's leadership offer hope and opportunity". Bill has appeared on ABC's Nightline, which featured a rehabilitation program developed and implemented by Boston University's Center for Psychiatric Rehabilitation. Ted Koppell characterized it as a model program: "a small beacon of sanity in dealing with the problems of those whose sanity has crumbled"; In 1992, Bill received the Distinguished Service Award from the President of the United States for his efforts "...in promoting the dignity, equality, independence and employment of people with disabilities". Bill has authored over 100 articles in professional journals, 18 textbooks, and several dozen book chapters. His latest professional books were published in 2002, 2008 & 2011. A completely updated and revised second edition of Psychiatric Rehabilitation was published in 2002. In 2008, the Toward a Vision of Recovery (book & cd) was published. Also in 2008 Principled Leadership was co-authored with Kevin Huckshorn, and in 2011 Readings in Psychiatric Rehabilitation was co-edited with Kathy Furlong Norman . In a departure from his professional writing, Bill has written two trade books. They are: The Art of Napping and The Art of Napping at Work. These books are a whimsical, light-hearted look at a skill that does merit serious attention -- especially in our sleep-deprived, 'nap-ready' culture. He has discussed napping on numerous TV and radio shows, including the Today Show, Good Morning America, CNN, Fox, The Osgood File, and the BBC; the Art of Napping and The Art of Napping at Work have been featured in numerous print media, such as The Wall Street Journal, USA Today, New York Times, the London Daily Express, and dozens of local newspapers and national magazines. Bill lives in Reading, Massachusetts, is married and has three daughters and six grandchildren.
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Funds
Tuesday, May 21, 2013
Featured Fund
Anatomy Fund
Bill Anthony General Research Fund
CooperRiis Fund for Healing Community Development
Dorothea Dix Think Tank Fund
Empathic Therapy Fund
Healing Voices Film Fund
Hearing Voices Research & Development Fund
Holistic Healing Fund
Mother Bear: Families for Mental Health
New Standard of Care Fund
Paul J. Fink Fund
Recovery of Community Life through Dialogue Fund
RxISK Fund
Open Path Psychotherapy Collective Fund
Join the team
Find a therapist
The
Open Path Psychotherapy Collective
has officially launched!
There are many people in need of mental health care who find themselves in a bind: earning too much to qualify for government assistance, and too little to afford a weekly or even every-other-week session with a qualified psychotherapist, psychologist, or social worker. No more. Open Path Psychotherapy Collective will be a network of like-minded mental health clinicians dedicated to reaching those individuals and families who are falling through the cracks. The Collective—with the support of the Foundation for Excellence in Mental Health Care (FEMHC)—will match participating clinicians with individuals in need of local, in-office mental health care—for a steeply reduced rate.
According to the National Institute of Mental Health, it is estimated that 48 million Americans suffer from a mental health disorder —4 million of whom are children between the ages of 9 and 17. 90% of people with access to psychotherapeutic services and subsequent treatment, report significant long term improvements. “In the real world, cooperation works better,” said our former President Bill Clinton recently. Open Path Psychotherapy Collective will bridge the invisible economic gulf between qualified mental health professionals and the Americans who need them.
The Collective is in the first stage of building and designing a website that will provide a searchable, open, and detailed index of psychotherapists, psychologists, and social workers who will join the Open Path Psychotherapy Collective. A strong site built to grow with the needs of the Collective will help attract and retain clinicians committed to the vision of philanthropic psychotherapy and reach a wider swath of individuals in need. Charitable contributions will help build and maintain the site and aid in recruiting and screening qualified mental health clinicians who will be the first members of the Collective. Catching this first wave of clinicians is critical: they will help spread the word among the therapeutic community, stretching the border of the pilot-program in North Carolina outward to the fifty states. Please note the funds raised will go towards building the website and getting an office up and running. Once the connection between client and therapist is made, the client will be responsible for paying the clinician the discounted fee.
Open Path is a partner with
Psychotherapy Networker
magazine and
Goodtherapy.org
.
Anatomy Fund
The Anatomy Fund was established to distribute Robert Whitaker's book
Anatomy of an Epidemic
to professionals for the creation of study groups.
Bill Anthony General Research Fund
Honoring Bill Anthony, PhD, considered the father of the Recovery Movement, this fund is dedicated to attracting philanthropic resources to support research and program development focused on expanding the availability of effective recovery programming.
This fund is currently supporting the following
grant projects:
Early Psychosis Treatment Research
Early psychosis treatment is the bedrock of making recovery the new mainstream. The Collaborative Pathways Project below is just the first of many grants to come that will support research in this area.
$1,976,446
Collaborative Pathways Project
In the
Collaborative Pathway
, we engage young people at the start of their encounter with the mental health system to change their trajectory from disability and chronicity to recovery-oriented self-direction. The person in crisis is engaged in a way that includes him/her and his or her support system in treatment decisions from the very start, using clear, everyday language to make decision-making accessible.
The Collaborative Pathway uses an existing, state-of-the-art, recovery-oriented mobile crisis team to deliver services in the home whenever possible; avert unnecessary hospitalization; and build on the person’s and family’s strengths and preferences. The model uses shared decision making and informed choice about neuroleptic medications to apply “collaborative psychopharmacology” principles, honoring as an option the possibility of using little or no neuroleptic when that is the patient’s and family’s preference and opting for benzodiazepines for symptomatic relief of anxiety/insomnia, again if this is the person’s and family’s preference. Such neuroleptic delay/minimization has been demonstrated to result in no long-term negative consequences, allowing individuals and families time to collaborate on treatment decisions.
Principal Investigator: Chris Gordon, MD
Fiscal Agent: Advocates, Inc.
Location: Framingham, MA
$259,700
Adapting the Open Dialogue Model in the United States
The beginning of
this project
is already underway, overseen by Dr. Doug Ziedonis at the University of Massachusetts Medical School. Additional funding will allow the research team to develop the full practice manual as well as the full set of fidelity scales.
Project Approach
The project will lead to the creation of specific tools to help clinicians, program leaders, and researchers further implement and evaluate the Open Dialogue approach in the United States. Developing these materials will be an iterative process that includes further written description of the approach, training and pilot implementation, and obtaining feedback through supervision and other methods. The building blocks will then lead our research group (and others) to do future clinical studies of specific populations (first break psychosis cases, transitional age youth, etc) and organizational change studies (in which there are a wider range of clinical cases, but the study is of the system, clinicians, and clients).
$700,000
CooperRiis Fund for Healing Community Development
The purpose of this Fund is to support nonprofit leaders and professionals who wish either to enhance the recovery methods of their existing organizations or develop new healing communities.
Think Tank member and journalist Peter Earley
lecturing a class at USC's Saks Institute on
issues related to the decriminalization of mental illness.
Dorothea Dix Think Tank Fund
The
Dorothea Dix Think Tank
was created by Dr. Dean Brooks to decriminalize mental illness.
.
“With Science as our lens and Empathy as our light”
Empathic Therapy Fund
With science as our lens and empathy as our light, we believe that all emotional and psychological healing begins within a respectful and caring relationship. We believe that being helpful to others comes first from the heart, and then draws upon sound principles, including scientific integrity, personal responsibility, honesty, and respect for the uniqueness of each individual.
We value the integrity and inviolability of each person’s brain, mind, and spirit, and embrace the ideal of “First, do no harm!” Based on science and empathy, the best approaches are wholly voluntary and entirely free of psychiatric diagnoses and drugs. As pioneers in the emerging field of empathic therapy, we encourage all human services that are rooted in mutual respect and equality between those who seek help and those who wish to provide it.
“Empathic therapy” encompasses the many therapeutic, educational and self-development programs that are rooted in empathy. Members of our organization, the Center for the Study of Empathic Therapy, Education and Living (a nonprofit 501c3), include professionals from a wide variety of specialties, viewpoints and practices, as well as advocates and laypersons (the general public). Our members are bound together by their shared dedication to empathy in our work and personal lives.
We support research, education, publications, conferences, and other projects that are based on and that foster caring, respectful human relationships.
The Center for the Study of Empathic Therapy, Education & Living has an Advisory Board of more than 70 outstanding, international professionals from the fields of medicine, neurology, psychiatry, nursing, addiction, psychology, social work, counseling, ministry, education, law and public advocacy. The Center was founded by psychiatrist Peter R. Breggin, MD and Ginger Ross Breggin. Visit us at our nonprofit website
www.EmpathicTherapy.org
.
Healing Voices Film Project
Healing Voices
is a narrative documentary currently in production. Healing Voices will chronicle the lives of a few people who experience mental health issues, extreme states, and/or trauma in real time, as well as featuring some foundational characters who have made incredible recoveries mostly by finding alternatives to our current medical model. Making appearances in the film will be many of the leaders of the consumer/survivor/ex-patient movement in mental health from around the country.
Project managers: PJ Moynihan & Oryx Cohen
Location: nationwide
$250,000
.
Gail Hornstein, PhD, Professor of Psychology at Mount Holyoke College and author of the new book,
Agnes's Jacket: A Psychologists Search for the Meanings of Madness
.
Jacqui Dillon, National Chair, Hearing Voices Network, England
Hearing Voices Research & Development Fund
The Hearing Voices Research and Development Fund has been established to advance the development of the Hearing Voices Approach in the U.S. The Project was created by Gail A. Hornstein, Professor of Psychology at Mount Holyoke College, and Jacqui Dillon, National Chair of the Hearing Voices Network in England, who have been working together for 10 years to bring new approaches to understanding and coping with voice hearing.
Background
People who hear voices, see visions, or experience other extreme states often end up being diagnosed as psychotic (usually with schizophrenia) and a poor prognosis. The medications which have routinely been prescribed for such patients since the 1950s are effective for some but not for others, and even when they do work, their benefits typically diminish over time, while destructive physical and psychological side effects become increasingly problematic. Hearing voices in particular remains a challenge for many, many patients even after they have been tried on every possible medication over many years, and continues to be seen by many psychiatrists as a "treatment-resistant" symptom.
Hearing Voices Approach
For the past 25 years, the Hearing Voices Network – an international collaboration of professionals, people with lived experience, and their families and friends – has been working to develop an alternative approach to coping with voices, visions, and other extreme states that is empowering and useful and does not start from the assumption that people who have these experiences suffer from a chronic illness. A large body of research data, published in major professional journals, now provides support for key aspects of this approach (see references below), and the hundreds of peer-support groups that have developed in 20 countries around the world are enabling voice hearers – even those who have been chronically disabled – to learn to cope more effectively or rid themselves of the negative effects of their voices. These groups are now starting to spread across the US, but the lack of a systematic program for training potential facilitators and others interested in incorporating HVN's work into their research or teaching is holding the United States back from being able to offer this effective, community-based psychosocial alternative to the current risky practice of large-dose, long-term treatment with (usually multiple) medications.
Hearing voices peer-support groups offer a safe place for people to share their experiences of voices, visions, tactile sensations and other unusual experiences and perceptions. People meet together to help and support each other, to exchange information, and to learn from one another’s coping strategies. Groups also offer an opportunity for people to accept and “live with voices” in a way that enables them to regain some control over their lives.
The situation in the US stands in striking contrast to that of other countries. For example, England (a country with a population of 60 million) has 180 hearing voices groups, and Denmark (a country of 5 million) has several dozen, whereas the US, with its population of over 300 million, currently has only about 15. The fund will support the development of HVN groups across the US by providing a systematic program of training that will create a network of hearing voices peer-support groups in key centers in each region of the country. Participants will be selected using a rigorous model in which mental health professionals and voice hearers collaborate in an intensive shared learning experience that equips them to apply HVN's concepts and methods to the creation of positive alternatives for people diagnosed with psychosis.
Hearing Voices Research
The fund will also support a research study to provide the kinds of basic phenomenological descriptions of the voice hearing experience that have become increasingly essential to other research in this area.
Even though more and more researchers have become interested in investigating the complexities of voice hearing in and of itself (as opposed to treating it simply as one of a number of so-called "positive symptoms" of schizophrenia), the lack of a clear identification of the defining characteristics and significance of the experience for voice hearers makes it difficult to compare results across different studies. In addition, as colleagues from HVN have highlighted in their work (see references below), there is no evidence for the standard assumption that patients who hallucinate cannot articulate the triggers, contextual variability, or meaning of their experiences. The few phenomenological studies that have been conducted thus far demonstrate clearly that understanding the subjective experience of voice hearers themselves is essential to the ultimate effectiveness of any intervention designed to help them.
For More Information:
www.hearing-voices.org
www.intervoiceonline.org
www.hearingvoicesusa.org
www.gailhornstein.com
www.jacquidillon.org
Selected References
Beavan, V. (2011). Towards a definition of “hearing voices”: A phenomenological approach.
Psychosis: Psychological, Social and Integrative Approaches
,
3
, 63-73.
Dillon, J. (2006, November). Collective voices.
Open Mind
.
Dillon, J. and E. Longden (2012) Hearing voices groups: Creating safe spaces to share taboo experiences. In M. Romme and S. Escher (eds.),
Psychosis as a personal crisis: An experience-based approach
. London: Routledge.
Honig, A., M. Romme, B. Ensink, S. Escher, M. Pennings and M. Devries (1998). Auditory hallucinations: A comparison between patients and non-patients.
Journal of Nervous and Mental Disease, 186
, 646-651.
Hornstein, G.A. (2009).
Agnes's Jacket: A Psychologist's Search for the Meanings of Madness
. New York: Rodale Books. (UK edition, with a new introduction, PCCS Books, 2012)
Johns, L.C., J. Y. Nazroo, P. Bebbington and E. Kuipers (2002). Occurrence of hallucinatory experiences in a community sample and ethnic variations.
British Journal of Psychiatry, 180
, 174-78.
Lakeman, R. (2002). Making sense of the voices.
International Journal of Nursing Studies, 38
, 523-531.
Martin, P.J. (2000). Hearing voices and listening to those that hear them.
Journal of Psychiatric and Mental Health Nursing, 7
, 135-141.
Romme, M. and S. Escher (1989). Hearing voices.
Schizophrenia Bulletin, 15
, no. 2, 209-216.
Romme, M. and S. Escher (eds.). (1993; 2nd ed. 1998).
Accepting Voices
. London: MIND Publications.
Romme, M. and S. Escher (1996). Empowering people who hear voices. In G. Haddock and P. Slade (eds.),
Cognitive Behavioral Interventions with Psychotic Disorders
. London: Routledge, pp.137-150.
Romme, M. and S. Escher (2000).
Making Sense of Voices: A Guide for Mental Health Professionals Working with Voice-Hearers
. London: MIND Publications.
Romme, M. and S. Escher (2005). Trauma and hearing voices. In W. Larkin and A. Morrison (eds.)
Trauma and Psychosis: New Directions for Theory and Therapy
. London: Routledge.
Romme, M., S. Escher, J. Dillon, D. Corstens and M. Morris (eds.). (2009).
Living with Voices: 50 Stories of Recovery
. Ross-on-Wye, UK: PCCS Books.
Romme, M., A. Honig, E.O. Noorthoorn and S. Escher (1992). Coping with voices: An emancipatory approach.
British Journal of Psychiatry
, 161, 99-103.
Sayer, J., S. Ritter and K. Gournay (2000). Beliefs about voices and their effects on coping strategies.
Journal of Advanced Nursing
, 31, 1199-1205.
$110,000
Michael Gurevich, MD, a psychiatrist at the
HolisticMD
clinic in Long Island, NY, established the Holistic Healing Fund in 2012.
Holistic Healing Fund
What Model of Treatment Provides Better Medical, Financial and Quality of Life Outcomes: Disease Centered Medication Management or Patient Centered Holistic Approach?
This fund will support a long-term naturalistic follow up study of patients who failed to respond to the conventional treatment approach by assessing psychiatric and medical symptoms, quality of life and total economic cost of treatment.
Anxiety, Depression and Bipolar Disorder now affect more than 20% of the United States population and the rates are rapidly rising. The commonly held belief is that medication is the most effective therapy to treat these conditions. Indeed antidepressant, antipsychotic and antianxiety medications have become the largest groups of medications sold in the U.S. However, all medications have multiple side effects, short term effectiveness, require life-long maintenance and are very expensive.
The Disease Centered Model (DCM) of Anxiety, Depression and Bipolar Disorders focuses on identifying a particular disease in a patient and applying a specific treatment for a particular condition (usually one or more medications). As the illness progresses or the patient fails to respond, more medications are prescribed-- increasing side effects and treatment cost. There are no effective options to treat those who fail several medications. Treating patients without medications is not an option as well.
The Patient Centered Approach (PCA) has been used for centuries. It looks to restore a patient to health by applying treatments specific to the patient’s imbalances. Treatments are usually low cost, have few if any side effects and require the patient’s active participation in treatment. Medications are usually not part of a long term solution, but can be applied for a short time.
The DCM model, with its tendency to treat a condition aggressively, tends to be very expensive, causes multiple side effects and has a poor track record in treating chronic conditions. The PCA approach usually strives to improve a patient’s long term health, therefore improving symptoms and decreasing the economic cost of treatment. Our study will examine how applying the DCM or PCA treatment model and philosophy will affect a patient’s long term medical, psychiatric and quality of life outcomes and total economic cost of treatment.
This will be the first long term study assessing the medical and economic effectiveness of two different treatment models. It will assist in significantly reducing the cost of treatment, improving the outcome and quality of life for patients suffering from Anxiety, Depression and Bipolar Disorders who failed to respond to conventional treatments.
Goal: $500,000
Mother Bear: Families for Mental Health
The Mother Bear Fund is dedicated to uniting families to create a new mental health paradigm in which the whole family is supported, recovery is expected, the role of medication is carefully considered, the relationship between mental health and addiction is understood, and hope is encouraged through education about the many pathways to recovery, family-led community support, and access to recovery-oriented providers.
Learn more at
www.motherbearcan.org
and
www.facebook.com/MotherBearCAN
.
New Standard of Care Fund
ISEPP's New Standard of Care Fund will support various efforts to find, explore, study, understand and promote safe, humane, life-enhancing approaches to helping persons diagnosed with mental disorders.
In general, this means approaches which do not use psychotropic drugs as the primary modality of treatment but, rather, use drugs very judiciously, for very limited periods of time and only as an adjunct to other forms of treatment.
Examples of such other approaches are various forms of psychotherapy; residences based on the Soteria model; non-drug help for persons in early psychosis such as the Open Dialogue approach; supported employment, housing and education; support groups such as the Hearing Voices Network; peer support and other recovery-based approaches.
.
Paul J. Fink Fund
Supports the
Transformation Project
, a mentoring and education program for at-risk street youth in Philadelphia before they encounter a trauma that can lead to mental illness and violent crime.
$350,000
What is the recovery dialogue?
Dr. Fisher on hope and recovery
Recovery of Community Life through Dialogue Fund
The Recovery of Community Life through Dialogue Fund was established by the Dialogical Recovery Coalition with the leadership of the National Empowerment Center's Executive Director Dr. Dan Fisher, “to create a society which nourishes the life force in each and every living being through dialogical relationships.”
To learn more about the spirit and recovery practices that inform this donor-advised Fund's management,
visit the National Empowerment Center website
.
RxISK Fund
The RxISK Fund supports the collection, analysis, and publishing of patient data and related narratives of experiences with medications to promote recovery and make medicines safer for all of us through the integration of the best research data with clinical expertise and patient values.
Dr. David Healy and his team promote improved mental, physical, and holistic health and to this end have envisioned:
“Data-Based Medicine" which is the integration of the best research data with clinical expertise and patient values.
Fund-Supported Activities
Medication safety related activities that the RxISK Fund will support or provide include improved general medication outcomes and patient health by increasing education and awareness for the public through:
• The creation and dissemination of books, publications, and other materials,
• The provision of lectures to professionals, students and the public,
• The offering of expert assessments of new drugs by independent clinicians for licensed and
unlicensed indications,
• The analysis of generally patient-reported data relative to medication outcomes,
• The analysis of political, sociological, economic, legal, and regulatory impacts on health,
• The provision of specific educational resources for patients, consumers, and providers of
healthcare aimed at alerting them in general to the risks of treatment and risk mitigation
strategies,
• Access to instruments to determine the likely success to the public of a treatment program, the
impact of treatment drawbacks and the quality of medical care,
• The development of mobile applications for other treatments outlining the merits or drawbacks of
treatments. testing procedures, and of diagnoses for doctors and patients, and
• The development of a web-based tool enabling reporting by patients of medication outcomes.
U.S. residents can now make tax deductible donations to this global cause. Most of the fund activities will be carried on by Data Based Medicine Americas Ltd. which operates the global drug safety web site RxISK.org.
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