You are here Funds
Tuesday, May 21, 2013

         
  Anatomy Fund
The Anatomy Fund was established to distribute Robert Whitaker's book Anatomy of an Epidemic to professionals for the creation of study groups. 









































 


     
Bill Anthony General Research Fund
Honoring Bill Anthony, PhD, considered the father of the Recovery Movement, this fund is dedicated to attracting philanthropic resources to support research and program development focused on expanding the availability of effective recovery programming.









This fund is currently supporting the following grant projects:


Early Psychosis Treatment Research
Early psychosis treatment is the bedrock of making recovery the new mainstream. The Collaborative Pathways Project below is just the first of many grants to come that will support research in this area.

 
 

$1,976,446







Collaborative Pathways Project
In the Collaborative Pathway, we engage young people at the start of their encounter with the mental health system to change their trajectory from disability and chronicity to recovery-oriented self-direction.  The person in crisis is engaged in a way that includes him/her and his or her support system in treatment decisions from the very start, using clear, everyday language to make decision-making accessible.  

The Collaborative Pathway uses an existing, state-of-the-art, recovery-oriented mobile crisis team to deliver services in the home whenever possible; avert unnecessary hospitalization; and build on the person’s and family’s strengths and preferences. The model uses shared decision making and informed choice about neuroleptic medications to apply “collaborative psychopharmacology” principles, honoring as an option the possibility of using little or no neuroleptic when that is the patient’s and family’s preference and opting for benzodiazepines for symptomatic relief of anxiety/insomnia, again if this is the person’s and family’s preference. Such neuroleptic delay/minimization has been demonstrated to result in no long-term negative consequences, allowing individuals and families time to collaborate on treatment decisions.   


Principal Investigator: Chris Gordon, MD
Fiscal Agent: Advocates, Inc.
Location: Framingham, MA

 

$259,700







Adapting the Open Dialogue Model in the United States 
The beginning of this project is already underway, overseen by Dr. Doug Ziedonis at the University of Massachusetts Medical School. Additional funding will allow the research team to develop the full practice manual as well as the full set of fidelity scales.

Project Approach 
The project will lead to the creation of specific tools to help clinicians, program leaders, and researchers further implement and evaluate the Open Dialogue approach in the United States. Developing these materials will be an iterative process that includes further written description of the approach, training and pilot implementation, and obtaining feedback through supervision and other methods. The building blocks will then lead our research group (and others) to do future clinical studies of specific populations (first break psychosis cases, transitional age youth, etc) and organizational change studies (in which there are a wider range of clinical cases, but the study is of the system, clinicians, and clients). 

 

$700,000



       
  CooperRiis Fund for Healing Community Development
The purpose of this Fund is to support nonprofit leaders and professionals who wish either to enhance the recovery methods of their existing organizations or develop new healing communities.

























 

     

Think Tank member and journalist Peter Earley
lecturing a class at USC's Saks Institute on
issues related to the decriminalization of mental illness.




























Dorothea Dix Think Tank Fund 
The Dorothea Dix Think Tank was created by Dr. Dean Brooks to decriminalize mental illness. 
 

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“With Science as our lens and Empathy as our light”
  Empathic Therapy Fund  
With science as our lens and empathy as our light, we believe that all emotional and psychological healing begins within a respectful and caring relationship. We believe that being helpful to others comes first from the heart, and then draws upon sound principles, including scientific integrity, personal responsibility, honesty, and respect for the uniqueness of each individual.

We value the integrity and inviolability of each person’s brain, mind, and spirit, and embrace the ideal of “First, do no harm!” Based on science and empathy, the best approaches are wholly voluntary and entirely free of psychiatric diagnoses and drugs. As pioneers in the emerging field of empathic therapy, we encourage all human services that are rooted in mutual respect and equality between those who seek help and those who wish to provide it.
 

 
 
“Empathic therapy” encompasses the many therapeutic, educational and self-development programs that are rooted in empathy. Members of our organization, the Center for the Study of Empathic Therapy, Education and Living (a nonprofit 501c3), include professionals from a wide variety of specialties, viewpoints and practices, as well as advocates and laypersons (the general public). Our members are bound together by their shared dedication to empathy in our work and personal lives.

We support research, education, publications, conferences, and other projects that are based on and that foster caring, respectful human relationships.

The Center for the Study of Empathic Therapy, Education & Living has an Advisory Board of more than 70 outstanding, international professionals from the fields of medicine, neurology, psychiatry, nursing, addiction, psychology, social work, counseling, ministry, education, law and public advocacy. The Center was founded by psychiatrist Peter R. Breggin, MD and Ginger Ross Breggin. Visit us at our nonprofit website www.EmpathicTherapy.org.



     

           

  Healing Voices Film Project
Healing Voices is a narrative documentary currently in production. Healing Voices will chronicle the lives of a few people who experience mental health issues, extreme states, and/or trauma in real time, as well as featuring some foundational characters who have made incredible recoveries mostly by finding alternatives to our current medical model. Making appearances in the film will be many of the leaders of the consumer/survivor/ex-patient movement in mental health from around the country.


Project managers: PJ Moynihan & Oryx Cohen
Location: nationwide 
 

























 

$250,000


 

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Gail Hornstein, PhD, Professor of Psychology at Mount Holyoke College and author of the new book, Agnes's Jacket: A Psychologists Search for the Meanings of Madness.



Jacqui Dillon, National Chair, Hearing Voices Network, England
  Hearing Voices Research & Development Fund
The Hearing Voices Research and Development Fund has been established to advance the development of the Hearing Voices Approach in the U.S. The Project was created by Gail A. Hornstein, Professor of Psychology at Mount Holyoke College, and Jacqui Dillon, National Chair of the Hearing Voices Network in England, who have been working together for 10 years to bring new approaches to understanding and coping with voice hearing.


Background
People who hear voices, see visions, or experience other extreme states often end up being diagnosed as psychotic (usually with schizophrenia) and a poor prognosis. The medications which have routinely been prescribed for such patients since the 1950s are effective for some but not for others, and even when they do work, their benefits typically diminish over time, while destructive physical and psychological side effects become increasingly problematic. Hearing voices in particular remains a challenge for many, many patients even after they have been tried on every possible medication over many years, and continues to be seen by many psychiatrists as a "treatment-resistant" symptom.


Hearing Voices Approach
For the past 25 years, the Hearing Voices Network – an international collaboration of professionals, people with lived experience, and their families and friends – has been working to develop an alternative approach to coping with voices, visions, and other extreme states that is empowering and useful and does not start from the assumption that people who have these experiences suffer from a chronic illness. A large body of research data, published in major professional journals, now provides support for key aspects of this approach (see references below), and the hundreds of peer-support groups that have developed in 20 countries around the world are enabling voice hearers – even those who have been chronically disabled – to learn to cope more effectively or rid themselves of the negative effects of their voices. These groups are now starting to spread across the US, but the lack of a systematic program for training potential facilitators and others interested in incorporating HVN's work into their research or teaching is holding the United States back from being able to offer this effective, community-based psychosocial alternative to the current risky practice of large-dose, long-term treatment with (usually multiple) medications.

Hearing voices peer-support groups offer a safe place for people to share their experiences of voices, visions, tactile sensations and other unusual experiences and perceptions. People meet together to help and support each other, to exchange information, and to learn from one another’s coping strategies. Groups also offer an opportunity for people to accept and “live with voices” in a way that enables them to regain some control over their lives.

The situation in the US stands in striking contrast to that of other countries. For example, England (a country with a population of 60 million) has 180 hearing voices groups, and Denmark (a country of 5 million) has several dozen, whereas the US, with its population of over 300 million, currently has only about 15. The fund will support the development of HVN groups across the US by providing a systematic program of training that will create a network of hearing voices peer-support groups in key centers in each region of the country. Participants will be selected using a rigorous model in which mental health professionals and voice hearers collaborate in an intensive shared learning experience that equips them to apply HVN's concepts and methods to the creation of positive alternatives for people diagnosed with psychosis.


Hearing Voices Research
The fund will also support a research study to provide the kinds of basic phenomenological descriptions of the voice hearing experience that have become increasingly essential to other research in this area.

Even though more and more researchers have become interested in investigating the complexities of voice hearing in and of itself (as opposed to treating it simply as one of a number of so-called "positive symptoms" of schizophrenia), the lack of a clear identification of the defining characteristics and significance of the experience for voice hearers makes it difficult to compare results across different studies. In addition, as colleagues from HVN have highlighted in their work (see references below), there is no evidence for the standard assumption that patients who hallucinate cannot articulate the triggers, contextual variability, or meaning of their experiences. The few phenomenological studies that have been conducted thus far demonstrate clearly that understanding the subjective experience of voice hearers themselves is essential to the ultimate effectiveness of any intervention designed to help them.


For More Information:

www.hearing-voices.org
www.intervoiceonline.org
www.hearingvoicesusa.org
www.gailhornstein.com
www.jacquidillon.org


Selected References
Beavan, V. (2011). Towards a definition of “hearing voices”: A phenomenological approach. Psychosis: Psychological, Social and Integrative Approaches, 3, 63-73.

Dillon, J. (2006, November). Collective voices. Open Mind.

Dillon, J. and E. Longden (2012) Hearing voices groups: Creating safe spaces to share taboo experiences. In M. Romme and S. Escher (eds.), Psychosis as a personal crisis: An experience-based approach. London: Routledge.

Honig, A., M. Romme, B. Ensink, S. Escher, M. Pennings and M. Devries (1998). Auditory hallucinations: A comparison between patients and non-patients. Journal of Nervous and Mental Disease, 186, 646-651.

Hornstein, G.A. (2009). Agnes's Jacket: A Psychologist's Search for the Meanings of Madness. New York: Rodale Books. (UK edition, with a new introduction, PCCS Books, 2012)

Johns, L.C., J. Y. Nazroo, P. Bebbington and E. Kuipers (2002). Occurrence of hallucinatory experiences in a community sample and ethnic variations. British Journal of Psychiatry, 180, 174-78.

Lakeman, R. (2002). Making sense of the voices. International Journal of Nursing Studies, 38, 523-531.

Martin, P.J. (2000). Hearing voices and listening to those that hear them. Journal of Psychiatric and Mental Health Nursing, 7, 135-141.

Romme, M. and S. Escher (1989). Hearing voices. Schizophrenia Bulletin, 15, no. 2, 209-216.

Romme, M. and S. Escher (eds.). (1993; 2nd ed. 1998). Accepting Voices. London: MIND Publications.

Romme, M. and S. Escher (1996). Empowering people who hear voices. In G. Haddock and P. Slade (eds.), Cognitive Behavioral Interventions with Psychotic Disorders. London: Routledge, pp.137-150.

Romme, M. and S. Escher (2000). Making Sense of Voices: A Guide for Mental Health Professionals Working with Voice-Hearers. London: MIND Publications.

Romme, M. and S. Escher (2005). Trauma and hearing voices. In W. Larkin and A. Morrison (eds.) Trauma and Psychosis: New Directions for Theory and Therapy. London: Routledge.

Romme, M., S. Escher, J. Dillon, D. Corstens and M. Morris (eds.). (2009). Living with Voices: 50 Stories of Recovery. Ross-on-Wye, UK: PCCS Books.

Romme, M., A. Honig, E.O. Noorthoorn and S. Escher (1992). Coping with voices: An emancipatory approach. British Journal of Psychiatry, 161, 99-103.

Sayer, J., S. Ritter and K. Gournay (2000). Beliefs about voices and their effects on coping strategies. Journal of Advanced Nursing, 31, 1199-1205.
 

$110,000



   
 




Michael Gurevich, MD, a psychiatrist at the HolisticMD clinic in Long Island, NY, established the Holistic Healing Fund in 2012.
  Holistic Healing Fund

What Model of Treatment Provides Better Medical, Financial and Quality of Life Outcomes: Disease Centered Medication Management or Patient Centered Holistic Approach?

This fund will support a long-term naturalistic follow up study of patients who failed to respond to the conventional treatment approach by assessing psychiatric and medical symptoms, quality of life and total economic cost of treatment.

Anxiety, Depression and Bipolar Disorder now affect more than 20% of the United States population and the rates are rapidly rising. The commonly held belief is that medication is the most effective therapy to treat these conditions. Indeed antidepressant, antipsychotic and antianxiety medications have become the largest groups of medications sold in the U.S. However, all medications have multiple side effects, short term effectiveness, require life-long maintenance and are very expensive.

The Disease Centered Model (DCM) of Anxiety, Depression and Bipolar Disorders focuses on identifying a particular disease in a patient and applying a specific treatment for a particular condition (usually one or more medications). As the illness progresses or the patient fails to respond, more medications are prescribed-- increasing side effects and treatment cost. There are no effective options to treat those who fail several medications. Treating patients without medications is not an option as well.

The Patient Centered Approach (PCA) has been used for centuries. It looks to restore a patient to health by applying treatments specific to the patient’s imbalances. Treatments are usually low cost, have few if any side effects and require the patient’s active participation in treatment. Medications are usually not part of a long term solution, but can be applied for a short time.

The DCM model, with its tendency to treat a condition aggressively, tends to be very expensive, causes multiple side effects and has a poor track record in treating chronic conditions. The PCA approach usually strives to improve a patient’s long term health, therefore improving symptoms and decreasing the economic cost of treatment. Our study will examine how applying the DCM or PCA treatment model and philosophy will affect a patient’s long term medical, psychiatric and quality of life outcomes and total economic cost of treatment.

This will be the first long term study assessing the medical and economic effectiveness of two different treatment models. It will assist in significantly reducing the cost of treatment, improving the outcome and quality of life for patients suffering from Anxiety, Depression and Bipolar Disorders who failed to respond to conventional treatments.


Goal: $500,000


 

     

 
 
Mother Bear: Families for Mental Health
The Mother Bear Fund is dedicated to uniting families to create a new mental health paradigm in which the whole family is supported, recovery is expected, the role of medication is carefully considered, the relationship between mental health and addiction is understood, and hope is encouraged through education about the many pathways to recovery, family-led community support, and access to recovery-oriented providers.

Learn more at www.motherbearcan.org and www.facebook.com/MotherBearCAN.





































   

 

 
 
New Standard of Care Fund

ISEPP's New Standard of Care Fund will support various efforts to find, explore, study, understand and promote safe, humane, life-enhancing approaches to helping persons diagnosed with mental disorders.

In general, this means approaches which do not use psychotropic drugs as the primary modality of treatment but, rather, use drugs very judiciously, for very limited periods of time and only as an adjunct to other forms of treatment.

Examples of such other approaches are various forms of psychotherapy; residences based on the Soteria model; non-drug help for persons in early psychosis such as the Open Dialogue approach; supported employment, housing and education; support groups such as the Hearing Voices Network; peer support and other recovery-based approaches.










 

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  Paul J. Fink Fund
Supports the Transformation Project, a mentoring and education program for at-risk street youth in Philadelphia before they encounter a trauma that can lead to mental illness and violent crime.








































 

$350,000


 

           

What is the recovery dialogue?



Dr. Fisher on hope and recovery
  Recovery of Community Life through Dialogue Fund
The Recovery of Community Life through Dialogue Fund was established by the Dialogical Recovery Coalition with the leadership of the National Empowerment Center's Executive Director Dr. Dan Fisher, “to create a society which nourishes the life force in each and every living being through dialogical relationships.”

To learn more about the spirit and recovery practices that inform this donor-advised Fund's management, visit the National Empowerment Center website.








































 
 

           

  RxISK Fund
The RxISK Fund supports the collection, analysis, and publishing of patient data and related narratives of experiences with medications to promote recovery and make medicines safer for all of us through the integration of the best research data with clinical expertise and patient values.

 
 
Dr. David Healy and his team promote improved mental, physical, and holistic health and to this end have envisioned: “Data-Based Medicine" which is the integration of the best research data with clinical expertise and patient values.

Fund-Supported Activities
Medication safety related activities that the RxISK Fund will support or provide include improved general medication outcomes and patient health by increasing education and awareness for the public through:

• The creation and dissemination of books, publications, and other materials,

• The provision of lectures to professionals, students and the public,

• The offering of expert assessments of new drugs by independent clinicians for licensed and
  unlicensed indications,

• The analysis of generally patient-reported data relative to medication outcomes,

• The analysis of political, sociological, economic, legal, and regulatory impacts on health,

• The provision of specific educational resources for patients, consumers, and providers of
  healthcare aimed at alerting them in general to the risks of treatment and risk mitigation
  strategies,

• Access to instruments to determine the likely success to the public of a treatment program, the
  impact of treatment drawbacks and the quality of medical care,

• The development of mobile applications for other treatments outlining the merits or drawbacks of
  treatments. testing procedures, and of diagnoses for doctors and patients, and

• The development of a web-based tool enabling reporting by patients of medication outcomes.




U.S. residents can now make tax deductible donations to this global cause. Most of the fund activities will be carried on by Data Based Medicine Americas Ltd. which operates the global drug safety web site RxISK.org.






































 
     

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